screen-shot-2016-12-08-at-1-35-22-pmMy friends at sent me a link to this amazing article in STAT. The story is by Bob Tedeschi (@bobtedeschi).  Bob is a senior writer @statnews and focuses on patient and end-of-life stories. This article is titled “After he was gone, a shy man comes to life in words left behind.” It is remarkable. In short, this is the story of Stephen Wheeler, a man diagnosed with non-small cell lung cancer, and the important contribution he made as an active member of online patient communities during his life. Much of this was discovered by his family after his death. They are now in the process of curating more than 1,000 pages of posts from Bob.

Although it is cliche to say that this is a “must read,” I highly recommend reading this story. It will give you a clear understanding of the role that online communities play in the lives of patients, and will demonstrate just how much patients value the opportunity to share with one another and to be heard. You’ll also see how Bob’s posts touched the lives of other patients facing a cancer diagnosis.

If you’re not familiar with STAT, it is a “new national publication focused on finding and telling compelling stories about health, medicine, and scientific discovery.” (STAT website)

2 comments on “The Power of a Patient’s Voice

  1. I read this story Dan and was really moved by it. I am passionate about the role of stories in healthcare. I’ve been doing a lot of work in this area over the past two years, and the more deeply I dive into it the more I see the power of stories to connect us and to help us uncover deeper meaning and insight. When we are ill, the story of our life is profoundly disrupted and in order to move on we need to create a new story. Listening to the stories of how others have navigated this path can help us enormously.

    Thanks for your blogs over the past year – I read them all – and enjoy them very much. Wishing you the best for the Holiday season and the new year!

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