With my interest in online patient support communities, the rare disease community is top of mind. Last week, in a presentation I did for the New England Society for Healthcare Communications, I introduced the audience to a couple of the rare disease online community platforms: Rare Connect and NORD. Of course, in the past I’ve written a great deal about Inspire.com and the patient support communities they develop and manage.
The presence of these online patient support communities is so important for patients and families dealing with rare diseases. The more we can do to make people aware of these communities and the support they offer, the better.
Yesterday I was pleased to see a new infographic that draws attention to rare diseases and promotes RareDiseaseDay.org. Check out the infographic below: