I’m going to keep writing about online communities/patient communities until I believe that hospitals and health systems understand their importance! I don’t see that happening anytime soon. Do you? Here’s my mantra: Healthcare marketing needs to be about community-building. Many pharmaceutical companies get it. Many health insurance companies get it. Patients and families get it. So when will the rest of us catch on? But let’s focus on the positive. Please keep reading…
Earlier this week I received a press release from my friends at Inspire announcing the launch of an online community connecting patients affected by Pancreatic Neuroendocrine Tumors (PNET). The community establishes a free global network for patients and caregivers to share information and support. Group members discuss such topics as practical tips for the newly diagnosed, chemotherapy and targeted therapies, and surgical options. www.inspire.com/groups/pancreatic-neuroendocrine-tumor-pnet
To develop The Pancreatic Neuroendocrine Tumor (PNET) Support Community, Inspire has partnered with several non-profit NET-focused advocacy groups, with Novartis serving as the corporate sponsor. The non-profit partners include:
Until now, there was no peer-to-peer community just for people affected by PNETs. “Community” is the key word here. The new online group gives the sponsoring organizations a place to send members of their groups for further interaction with patients just like them. And this is exactly what patients are looking for. Bravo!