A new series of articles on Stanford’s award winning Scope Blog shares the unique stories of patients affected by serious and often rare diseases, told in their own words. This patient-focused series is being presented through a partnership with Inspire, a company that builds and manages online support communities for patients and caregivers. From my perspective, it is wonderful to see the Stanford School of Medicine working to bring the voice of the patient to the foreground. We need more of that within the field of medicine.
I recommend visiting the Scope Blog and reading the patients’ posts. My understanding is that these articles will continue to be posted on a monthly basis. So far there are five amazing articles in the series. I’ve provided links below:
- Expert by experience: Living with, and teaching about, short bowel syndrome by AndyJablonski
- The Beast cut in on my song: Living with coronary microvascular dysfunction by Annette Pompa
- Clinical trials: My next good chance by Linnea Duff
- Dr. Google: Threat or menace? by Laura Haywood-Cory (I met Laura at the Mayo Clinic Healthcare Social Media Summit last year, and she has an amazing story to tell.)
- An encephalitis journey: A dozen doctors and 2.5 years by Becky Dennis